I’m close to your opinion here. I just come down on the side that says palliative care should be as good as it can possibly be, to alleviate the suffering, and when the time comes you should die naturally.
In a spirit of sharing life experiences as others have (thank you) -
Last year I went to a funeral for a 4 year old girl. My wife and I know the parents and I’m friends with her dad. She wasn’t expected to live for very long after birth, but they got four precious years with her. It’s fair to say that the little girl knew more suffering than most, in her few short years. Multiple surgeries and various physical things were wrong. She was in and out of different hospitals quite a lot and her parents would travel to other cities to try this specialist and that specialist to see if anything more could be done.
Her life, even with all the suffering, had so much value. She was a force of nature with her older siblings, and in her own way she would try to do everything they could. She couldn’t talk but she could communicate with various sounds and had learned some sign language too. She could express her full array of emotions and for the people who knew her, she would often light up the room.
Her funeral was moved to a larger church in the area because their little church couldn’t handle the numbers. It was standing room only. The night before, when I went to the visitation, I stood in line for well over an hour before I even got inside the building to pay my respects. The whole community had come out for her.
As I reflect on the whole thing and write this post, I am as certain as I can be that the little girl’s suffering was not in vain. She was helped as much as she could possibly be helped, but I know there was a lot of anguish and struggle mixed in. It would not be fair or representative to pretend that aspect wasn’t there too.
But there was something more. There was also an outpouring of love that revealed something important about the human condition. It felt like we were at our best, rooting for, and rallying around the girl and her family, even though she died, and even though there was suffering in her life. It wasn’t in vain. I hope I don’t sound trite with all this, because I have a tear in my eye as I’m typing. It was tragic, but it was beautiful at the same time.